【走近罕见病群体】In China, rare diseases affect over 20 million people, with the impact of these conditions highlighted through Rare Disease Day and the story of a young girl in Shenzhen with Tuberous Sclerosis Complex. High treatment costs are a major hurdle.
Shenzhen is addressing this by implementing a health insurance scheme that decreases medication costs, exemplified by the dramatic price cut for the drug Sprinraza. Additionally, Shenzhen's insurance reforms have improved access to treatment for rare disease patients, enhancing patient care and medical expertise.

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